Life After an AMD Diagnosis

Life After an AMD Diagnosis Macular Degeneration Care

People know your name, NOT your story. They’ve heard what you’ve done, but NOT what you’ve been through. So take their opinions with a grain of salt. In the end, it’s NOT what others think, it’s what you think about yourself that counts. What is our daily life like as a VIP (visually impaired person)? Well, I…

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Things to Consider When Newly Diagnosed

Things to Consider When Newly Diagnosed Macular Degeneration Care

The day I was diagnosed with AMD: (Gulp…oh no!) Eight years ago I was diagnosed with wet AMD in my right eye and dry AMD in my left eye. My reaction was shock, fear, and confusion. I thought they were telling me I was going blind…soon! I knew absolutely nothing about this disease. The eye doctor was a…

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Focusing on the Can, Not the Can’t – Accepting the Limits of Macular Degeneration

Focusing on the Can, Not the Can’t - Accepting the Limits of Macular Degeneration Care Macular Degeneration

“When you are ready, the teacher will come.” I first heard that almost 50 years ago from a former college professor. It has sneaked into my consciousness at irregular intervals ever since. A reminder This morning it poured into my inbox. “Know your limits,” the universe seemed to say. First Simone Biles to drop out…

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The Best Way to Help Your Visually Impaired Loved One

The Best Way to Help Your Visually Impaired Loved One Care Macular Degeneration

“How can I help?” “Please let me know if you need anything.” “What do you need from me?” These are all very well-intentioned questions that we have each asked at one time or another. When offering help doesn’t work However, rarely do these offers actually work. Think about it. How many times have you offered…

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Improve vision with these items

Improve vision with these items Macular Degeneration Care Resources

Sight is a precious gift that enables a person to enjoy the world in a unique way. Yet many people are born with complete or partial vision loss, while others’ vision slowly dissipates over time. Macular conditions include age-related macular degeneration (AMD), which leads to a loss of both central vision and the ability to…

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Genetics, Epigenetics, and Cures for Macular Degeneration

Genetics, Epigenetics, and Cures for Macular Degeneration Macular Degeneration Care

I always knew that age-related macular degeneration is a multi-gene phenomenon, but this is ridiculous! A study published in Scientific Reports suggested there are up to 106 genes that could contribute to the development of AMD. 106! Really?!? And a minimum of 31 of those genes are also associated with other problems. An example of…

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Things To Remember if You Have Macular Degeneration

Things To Remember if You Have Macular Degeneration Macular Degeneration Storytelling

I remember the day after my first visit to a retinal specialist. He confirmed I had wet AMD in one eye and dry AMD in the other. This RS guy said to see the nurse to set up appointments for injections in my wet AMD eye! Did he just say he was going to stick…

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Change Is Hard

Change Is Hard Care Macular Degeneration

Shortly after being diagnosed with macular degeneration, the reality sets in that the way we have done things for years will have to change, possibly in the near future. How can I do ___? With loss of sight, how will you cook and clean? What if you can no longer drive, how will you get…

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Why Are Visits to the Eye Doctor Important?

Why Are Visits to the Eye Doctor Important? Care Macular Degeneration

I recently wrote an article about a conversation I had with a group of my friends. It was surprising to me to hear that they don’t see an optometrist annually. This was a foreign concept to me, as I visit some form of an eye doctor twice a year at a minimum. In that article,…

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Low Vision Glasses / Wearable Low Vision Technology

Low Vision Glasses / Wearable Low Vision Technology Technology Macular Degeneration Top Choices

Some of our experts have said wearable technology is the future to help those with vision loss live an active lifestyle.  Our wearable options make it possible for those with low vision to see and take part in everyday tasks, such as watching TV and being able to see a loved ones face. NuEyes e2…

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Doctor, How Bad Is It Going To Get?

Doctor, How Bad Is It Going To Get? Care Macular Degeneration

Hey Doctor so-and-so, “Am I going to go blind?” “Do I qualify for any clinical trials?” “What does my future hold?” These are all questions I’ve recently asked my RS doctor. Let me share his response with you. Q&A Am I going to go blind?  My RS said, “No! Although you may lose some of your central…

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Understanding the Expenses of Macular Degeneration

Understanding the Expenses of Macular Degeneration Macular Degeneration Care

I was reminded the other day of some of the additional costs of living with macular degeneration. I had been shopping for a battery for my portable lighted magnifier, when I started thinking about all the little, and not so little, extra costs of this sight stealing condition. Macular degeneration expenses Not only do we…

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